Audrinas Story

By her mum Gemma…

Our beautiful daughter Audrina is just 4 years old and in July last year we found out the devastating news that she has cancer. Audrina was diagnosed with high risk Neuroblastoma, a rare childhood cancer with one of the lowest survival rates. When myself and Zach found out our world literally fell apart and we have been battling ever since to do everything we can to get Audrina the lifesaving treatment she needs.

So far our little girl has spent her birthday in hospital, endured multiple surgical procedures and numerous rounds of Chemotherapy.  In December she had surgery to remove her tumour and at the start of this year she had her most gruelling treatment yet suffering through high dose chemotherapy and a stem cell transplant.  This last treatment was absolutely heartbreaking as we watched our baby girl go through some horrific symptoms.  Audrina had to resort to sign language due to an unbearably painful mouth and we held her as she vomited blood and experienced hallucinations from the high level of morphine required to ease her pain. I will never forget those weeks or the bravery Audrina showed. 

There is even more to come with radiotherapy, cis retinoic acid and immunotherapy all planned between now and October. At which point we hope and pray that Audrina will be in remission with no evidence of disease.

After all this intense treatment you would think she had been through enough but devastatingly children with high risk neuroblastoma have a very high risk of relapse.  There is a 50% chance that Audrina’s cancer will return if we end her treatment in line with NHS protocol in October. If relapse occurs, there is only a 10% chance of survival. There are no words for that kind of outlook.  There is nothing available on the NHS to prevent relapse.

We have been researching treatments in the US and Europe and the good news is that there are some pioneering treatments available to prevent relapse which have already saved hundreds of children’s lives.  These treatments have proven published peer reviewed results as part of phase II trials and offer real hope to children with high risk neuroblastoma.  We are doing all we can to help Audrina fight this evil disease but we can’t do it on our own.  We are asking you to help our little girl.

The world needs kids like Audrina to keep hope and happiness alive. Together we can do this for Audrina. Please. Help make that happen. Help my little girl survive this.  Help give Audrina the chance to grow up.

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